Grant's Groupies

Update on Grant's Appointment with the Surgeon:

Grant had an appointment today with the surgeon to check the skin tag and dimple on his rectum. He said the skin tag may just heal on its own but he feels no concern about having it removed. Its not interfering with bowel movements so its no concern. The dimple needs re-assessed at a later date since his bottom has a rash and its to hard to determine if it will need surgery.  


Now for the bad news, he found two Groin Hernias and feels an urgency to have surgery on them soon...as in this Friday (2 days from now). I stressed my concerns about the fact that Grant has Choanal Atresia (blocked nasal passage) and wondered if we should have surgery on it at the same time and also that it could be risky putting him in surgery with respiratory issues. The doctor suggested we see the ENT specialist today or tomorrow instead of next Friday as scheduled. So, we saw the ENT doctor and they felt no need for surgery on his nose till he's older. He scoped his nostril to make sure the one passage was clear and it was. He also checked his palate and said it doesn't appear to be a cleft palate but we'll know for sure at the 22Q clinic. He looked at his head and was concerned about the soft spot. I inquired about his concerns and he said, "let's just see what the neurologists say"....not very comforting but I guess this is what we will expect for the rest of his life. 


As for the surgery...the doctor does want him admitted for a night, at the least, due to his size and respiratory issues. The ENT doctor will be on-call should a problem arise in surgery. He will be put under anesthesia...not sure for how long yet. He will do his best to"save the family jewels" which means if he has to take them, he will. I have not received a call as to what time sugary will be, however, they did state that the surgeon is on-call that day which means should an emergency happen, we will have to wait. This is not a good thing when they are asking an infant to not eat. HE WILL BE A CRANKY BOY no matter what. 


On a good note, he was weighed and has gained half a pound...he is 6 lbs 3 oz's!! Hooray!!! So there is no need for a feeding tube at this time. That doesn't mean he won't ever have one...it just means for now he is doing better and gaining weight! 




Please pray for us all for Friday. 


Thank you and God Bless,
The Loechler Family


PS -  His neurology appointment is tomorrow so we should hopefully have more insight about what the abnormal brain-wave activity meant on the EEG. More updates to come....